Bundle 10 (2024)

Enrollment for this course is now closed, and its accreditation has ended.

Enroll in the current and accredited iteration of the COH/VA course if you would like to earn credit and a certificate of completion.

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Instruction
1 Learning Modules,
1 Elective Module, &
Many Mock Counseling Samples

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Time
1.00 Hours

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Tasks
1 Quiz


Ethical, Legal, and Social Issues in Cancer Genetics

  • Recognize ethical, legal and social issues relevant to cancer genetics counseling and testing.
  • Apply bioethical principles to counseling challenges.
  • Identify emerging legislation protecting against genetic discrimination.

Elective: Pyscho-social and Family Dynamics of Hereditary Cancers

  • Recognize key psychological principles and how they generalize across hereditary cancer syndromes.
  • Discuss  how psychological factors may interact with specific features of hereditary risk.
  • Review how these processes may effect emotional adjustment, decision-making, quality of life.
  • Identify family- and individual-level challenges commonly encountered in working with familial risk patients.
  • Review brief assessments and tools that can be incorporated into cancer risk consultations.
  • Identify red flags that indicate consideration of referral for psychological support.

Elective: Mock Counseling Session, Mock Counseling Case Vignettes

  • Observe the application of cancer risk assessment and counseling skills in the setting of mock initial and follow up genetic cancer risk assessment (GCRA) consultation sessions.
  • Recognize the key elements of a comprehensive GCRA counseling process.
  • Review the essential components of the informed consent process for genetic testing.
  • Identify how to address ethical, legal and social issues with patients and families.
  • Recognize key issues related to genetic test results interpretation, disclosure and communication of personalized risk management recommendations.

Ilana Solomon, ScM, MA, CGC

Deputy Director, Center for Precision Medicine

City of Hope

Ilana Solomon, ScM, MA, is the Deputy Director for the Center for Precision Medicine and a licensed board-certified genetic counselor specializing in cancer genetics. She received her Master’s degree Genetic Counseling from the Johns Hopkins/National Human Genome Research Institute. Ilana joined the City of Hope Division of Clinical Cancer Genomics in 2013, where she has provided cancer genetics services for patients and families suspected to have a hereditary predisposition to cancer. Since 2019 she also manages and develops City of Hope’s Precision Medicine Program, with the goal of providing all City of Hope patients with genomic-driven care at scale. She has research interests in healthcare communication and implementation, genetic literacy, and ELSI in genomics. She helped co-develop Helping Oncology Patients Explore (HOPE) Genomics: a patient-directed IT platform for cancer genome sequencing education and return of results. She is faculty for the City of Hope Intensive Course in Genetic Cancer Risk Assessment. She is an active member of the National Society of Genetic Counselors and Southern California Genetic Counselors.

Régine Lim, MS, CGC

Supervisory Genetic Counselor

Clinical Cancer Genetics Service, Veterans Affairs

Régine M. Lim, MS, CGC is a Supervisor with the Clinical Cancer Genetics Service (CCGS) for the National Oncology Program through National TeleOncology. Régine is also involved in supporting genetics operations needs for Tandem Genetics and Asian Egg Bank. She has been a genetic counselor for 13 years in various clinical and laboratory positions. In her current role with the VA, she maintains an active patient schedule, directly serving Veterans across the U.S., and she supports an exceptional team of providers within CCGS. Régine is a member of the National Society of Genetic Counselors and she is certified by the American Board of Genetic Counseling.

Karen Hurley, PhD.

Licensed Clinical Psychologist, Adjunct Assistant Faculty

Karen E. Hurley, Ph.D. is a licensed clinical psychologist at the Cleveland Clinic specializing in hereditary cancer risk. She received her A.B. in psychology from Bryn Mawr College in 1983, and her Ph.D. in clinical psychology from Temple University in 1998. Before joining the Cleveland Clinic staff, she spent eight years on faculty at Memorial Sloan-Kettering Cancer Center conducting NCI-funded research on patient decision-making about cancer genetic risk management and other psychosocial issues relevant to high risk patients. She has provided psychotherapy and consultation to over 400 individuals, families and couples with a variety of inherited cancer susceptibility syndromes, including breast/ovarian (BRCA1/2), Lynch syndrome, familial adenomatous polyposis (FAP), Li-Fraumeni syndrome, and diffuse gastric cancer syndrome (CDH1). Dr. Hurley has conducted numerous professional education seminars and patient workshops for organizations such as American Psycho-Oncology Society, the National Society of Genetic Counselors, and FORCE (Facing Our Risk of Cancer Empowered). She is a past or current member of several national advisory boards for high risk individuals, including FORCE, Bright Pink, Sharsheret, The Cancer Support Community’s Breast & Gastric Cancer Registries, the City of Hope National Medical Center’s Cancer Genetics Career Development Program, and the National Cancer Institute’s PDQ Cancer Genetics Editorial Advisory Board. In 2014 she received the Spirit of Empowerment-Individual Commitment award at the 8th Annual FORCE conference, in recognition of her work on behalf of the hereditary cancer community.

Elise Sobotka, MS, MPH, CGC

Genetic Counselor

City of Hope

ELISE SOBOTKA, MS, MPH, CGC is a licensed, board-certified genetic counselor specializing in cancer genetics at the City of Hope National Medical Center in Duarte, CA. She has a Master of Science in genetic counseling and a Master of Public Health in health management and policy from the University of Michigan. Elise joined the Division of Clinical Cancer Genomics in 2020 and is affiliated with City of Hope's Duarte location. Her current research projects are focused on understanding cancer risks, penetrance, prevalence, and clinical outcomes in unselected populations undergoing genetic testing, and leveraging the electronic health record to improve genomic care.  She is currently a faculty member of the City of Hope Intensive Course in Genetic Cancer Risk Assessment, chair of the National Society of Genetic Counselors Position Statement Committee, and an active member of the National Society of Genetic Counselors and Southern California Genetic Counselors.

Elyssa Zukin, MS, CGC

Genetic Counselor

City of Hope

ELYSSA ZUKIN, MS, CGC is a licensed, board-certified genetic counselor specializing in cancer genetics at City of Hope National Medical Center. She has a Master of Science degree in genetic counseling from the University of California, Irvine, and a bachelor’s degree from the University of California, Los Angeles. Zukin joined City of Hope in 2020 as part of the Center for Precision Medicine. Her past research investigated the implications on clinical care when patients are found to carry genetic variants in genes associated with hereditary cancer syndromes that have conflicting interpretations by different genetics laboratories. She is a faculty member of the City of Hope Intensive Course and Clinical Cancer Genomics Community of Practice, and a member of the National Society of Genetic Counselors and the Southern California Genetic Counselors.

Key:

Complete
Failed
Available
Locked
Ethical, Legal, and Social Issues in Cancer Genetics
Open to view video.  |  42 minutes
Open to view video.  |  42 minutes Recognize ethical, legal and social issues relevant to cancer genetics counseling and testing. Apply bioethical principles to counseling challenges. Identify emerging legislation protecting against genetic discrimination.
Quiz 10A
3 Questions  |  Unlimited attempts  |  4/5 points to pass
3 Questions  |  Unlimited attempts  |  4/5 points to pass Quiz for Ethical, Legal, and Social Issues in Cancer Genetics
Learning Evaluation
Bundle 10 Evaluation
4 Questions
4 Questions Please respond to the statements in this evaluation as they relate to your experiences with this review bundle. This survey will take less than 3 minutes to complete. This survey should be completed AFTER you have completed all required items in this module.
Updated Modules
Navigating Genetic Testing for Cancer Risk and VA-Specific Resources
Open to view video.  |  18 minutes
Open to view video.  |  18 minutes Recognize the number of challenges in assessing hereditary predisposition to cancer in the Veteran Population, including military exposures Identify genetic counseling resources within the VA Familiarize with VA germline genetic testing resources through NPOP
Elective Modules
Psycho-social and Family Dynamics of Hereditary Cancers (ELECTIVE)
Open to view video.  |  95 minutes
Open to view video.  |  95 minutes Recognize key psychological principles and how they generalize across hereditary cancer syndromes. Discuss how psychological factors may interact with specific features of hereditary risk. Review how these processes may effect emotional adjustment, decision-making, quality of life. Identify family- and individual-level challenges commonly encountered in working with familial risk patients. Review brief assessments and tools that can be incorporated into cancer risk consultations. Identify red flags that indicate consideration of referral for psychological support.
Mock Counseling: Scenario 1 (ELECTIVE)
Open to view video.  |  4 minutes
Open to view video.  |  4 minutes Strategies to verify or ascertain cancer diagnoses while collecting a family history
Mock Counseling: Scenario 2 (ELECTIVE)
Open to view video.  |  3 minutes
Open to view video.  |  3 minutes Discussion about additional recommended genetic testing when a patient has previously been tested
Mock Counseling: Scenario 3 (ELECTIVE)
Open to view video.  |  3 minutes
Open to view video.  |  3 minutes An explanation of the difference between germline and somatic testing, and how somatic results could indicate a need for germline testing
Mock Counseling: Scenario 4 (ELECTIVE)
Open to view video.  |  4 minutes
Open to view video.  |  4 minutes Discussion of the benefits and limitations of broad vs. focused panel testing
Mock Counseling: Scenario 5 (ELECTIVE)
Open to view video.  |  3 minutes
Open to view video.  |  3 minutes Explanation of the possibility of identifying a variant of uncertain significance (VUS) and the implications of this result for the patient and their family
Mock Counseling: Scenario 6 (ELECTIVE)
Open to view video.  |  3 minutes
Open to view video.  |  3 minutes A walkthrough of the different elements of a genetic test report.
Mock Counseling: Scenario 7 (ELECTIVE)
Open to view video.  |  4 minutes
Open to view video.  |  4 minutes Discussion of a positive test result with an affected patient.
Mock Counseling: Scenario 8 (ELECTIVE)
Open to view video.  |  4 minutes
Open to view video.  |  4 minutes Discussion of the implications of a positive test result for family members.
Mock Counseling: Scenario 9 (ELECTIVE)
Open to view video.  |  4 minutes
Open to view video.  |  4 minutes Explanation of the implications of an uninformative test result for family members.
Mock Counseling: Scenario 10 (ELECTIVE)
Open to view video.  |  3 minutes
Open to view video.  |  3 minutes Explanation of the implications of an uninformative genetic test result for an unaffected patient who has residual empiric risk.
Mock Counseling: Scenario 11 (ELECTIVE)
Open to view video.  |  3 minutes
Open to view video.  |  3 minutes Discussion of a low-level pathogenic variant and possible explanations and next steps for the patient
Mock Counseling: Scenario 12 (ELECTIVE)
Open to view video.  |  4 minutes
Open to view video.  |  4 minutes Demonstrate a discussion of an incidental pathogenic variant on genetic testing