Resources for Patients

To Find A Cancer Genetics Clinician

• NCI Cancer Genetics Services Directory
• National Society of Genetic Counselors

Tutorials on Basic Genetics/Cancer Genetics/Oncology

• Genetics/Genomics Competency Center for Education:  tools for genetic competencies
• DNA from the Beginning
• Inside Cancer: NIH NCCR
• University of Kansas Medical Center Information for Genetics professionals

Support Organizations for Individuals with Hereditary Cancer Syndromes & Other Resources

• NIH Genetics Home Reference
• Facing Our Risk of Cancer Empowered (FORCE)
• Bright Pink
• Hereditary Colon Cancer Takes Guts
• Li-Fraumeni Syndrome Association
• Genetic Alliance
• No Stomach For Cancer
• Kin Talk
• FAP International
• GINA Help: Information about GINA
• Kimball Family Foundation: Promoting genetic breast and ovarian cancer awareness and funding research
• The VHL Alliance
• BRCA Decision Tool: for unaffected BRCA carriers
• ACS free patient brochures
• RRSO decision making publication by Fox Chase Cancer Center
• My Family Health Portrait
• Pheo Para Troopers
• Sharsheret
• His Breast Cancer: Insight and Education on Male Breast Cancer
• Gorlin-Goltz Syndrome: Support group
• AMEND:MENs and PGL Support group, based in UK but has contacts in the USA
• Thyroid Cancer: information
• —For pheos/PGL: information